Newly Diagnosed? - start here
A closed Facebook group for parents experiencing a life-limiting diagnosis for their unborn child, either currently or in the past. It is a private place for parents to share support, information, and hope for continuing the pregnancy and beyond.
Perinatal Hospice and Palliative Care
Perinatal hospice and palliative care is an innovative and compassionate model of support that can be offered to parents who find out during pregnancy that their baby has a life-limiting condition.
Providing the gift of remembrance photography for parents suffering the loss of a baby.
A non-profit organization dedicated to helping parents gather the support, tools, and resources necessary to navigate the range of questions and emotions accompanying a terminal prenatal diagnosis, and the decision to carry a pregnancy to term—all while embracing and celebrating precious memories with your baby.
Support for families who continue their pregnancy after a fatal diagnosis.
Includes online resources and private groups to connect with other families.
Carrying/Carried Pregnancy Despite Poor or Fatal Prenatal Diagnosis - support group
BooksBy Amy Kuebelbeck and Deborah L. Davis, Ph.D.
A Gift of Time is a gentle and practical guide for parents who are (or are considering) continuing their pregnancy knowing that their baby's life will be brief.
By Amy Kuebelbeck
A memoir about prenatal diagnosis, continuing a pregnancy, and embracing a baby's life.
By Angie Smith
In 2008, Angie Smith and her husband Todd (lead singer of the group Selah) learned through ultrasound that their fourth daughter had conditions making her “incompatible with life.” Advised to terminate the pregnancy, the Smiths chose instead to carry this child and allow room for a miracle. That miracle came the day they met Audrey Caroline and got the chance to love her for the precious two-and-a-half hours she lived on earth.
A community of compassion and hope for grieving families.
Providing C.A.R.E. [counseling, advocacy, research, and education] services to families experiencing the death of a child.
Support for Specific Diagnoses
Trisomy and Chromosome Disorders
to encourage the search for treatments and preventions of Trisomy 18, to educate and support medical professionals, and to create a caring worldwide community for affected families.